The ABC of Cancer Guide: Validation of an Educational Book for Children, Families, and Healthcare Professionals
DOI:
https://doi.org/10.32635/2176-9745.RBC.2024v70n4.4982Keywords:
Pediatrics, Health Education, Teaching Materials, Treatment Adherence and Compliance, Child HealthAbstract
Introduction: The diagnosis of childhood cancer brings fear, distress, and suffering to patients and their families, negatively impacting communication and treatment adherence. Validated educational materials can improve understanding and active participation in care. Objective: To validate the content of the educational book “The ABCs of Cancer Guide” from the perspective of children, adolescents, families, and healthcare professionals. Method: Methodological study of content validation using the Suitability Assessment of Materials (SAM) method to evaluate material adequacy in six categories (content, language, illustration, presentation, motivation, and cultural adaptation) and indicators of user’s experience. Data were collected virtually via Adobe Sign and analyzed with the software Statistical Package for the Social Sciences (SPSS), applying indicators as clarity, vocabulary, attractiveness, and usability. Results: The study enrolled 12 children and adolescents, 20 family members, and 29 healthcare professionals. The material was validated with scores of 100% by children and adolescents, 98.4% by family members, and 97.6% by healthcare professionals, exceeding the minimum scores of 40% and 60% required to rate the material as adequate or superior. Suggestions for improvement of clarity and vocabulary were made, particularly for audiences with lower health literacy. Conclusion: “The ABCs of Cancer Guide” was validated as an appropriate tool for health education for children undergoing cancer treatment and their families. Future studies are recommended to evaluate the guide’s impact on clinical practice and improvement of treatment adherence.
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