Obtaining Cancer Net Survival Estimates in Brazil: Potentialities and Challenges
DOI:
https://doi.org/10.32635/2176-9745.RBC.2025v71n1.4910Keywords:
Neoplasms/epidemiology, Electronic Health Records, SurvivalAbstract
Cancer surveillance involves systematic strategies to monitor individuals at risk, to identify early signs of the disease, improve clinical outcomes and increase survival rates. Cancer registries are an essential tool of cancer control as they measure the incidence and trends of the disease, providing indicators to plan the evaluation of cancer control activities. In addition, they help the elaboration of researches recommended by the guidelines of the National Health System (SUS). The text discusses the benefits and challenges the registries face, standing out how they impact the collection and utilization of essential data for research and survival analysis. Population registries have to deal with poor integration of data and constant updating of the systems to monitor new information and technologies. Hospital registries may have to cope with consistency issues and quality of the data because of the diversity of protocols of collection and documentation. It is necessary to enhance the standardization of the data and collaboration among institutions to overcome these challenges and to improve the efficacy of cancer registries and help to maximize the potential of the registries for researches and survival of patients with cancer.
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Organização Pan-Americana da Saúde [Internet]. Washington, DC: Opas; 2024. Cancer, 2020. [Acesso 2024 jul 10]. Disponível em: https://www.paho.org/pt/topicos/cancer
Instituto Nacional de Câncer [Internet]. Rio de Janeiro: INCA; 2022. Introdução, 2022 set 1. [Acesso 2024 out 21]. Disponível em: https://www.gov.br/inca/pt-br/assuntos/cancer/numeros/estimativa/introducao
Instituto Nacional de Câncer. ABC do câncer [Internet]. Rio de Janeiro: INCA; 2019. [Acesso 2024 out 21]. Disponível em: https://www.inca.gov.br/publicacoes/livros/abc-do-cancer-abordagens-basicas-para-o-controle-do-cancer
Ellis L, Woods LM, Estève J, et al. Cancer incidence, survival and mortality: explaining the concepts. Int J Cancer. 2014;135:1774-82. https://doi.org/10.1002/ijc.28990 DOI: https://doi.org/10.1002/ijc.28990
Christen P. Data matching: concepts and techniques for record linkage, entity resolution, and duplicate detection. Washington, DC: Springer Science & Business Media; 2012. 279 p. DOI: https://doi.org/10.1007/978-3-642-31164-2
Ellis L, Belot A, Rachet B, et al. The mortality-to-incidence ratio is not a valid proxy for cancer survival. J Glob Oncol. 2019;5:1-9. DOI: https://doi.org/10.1200/JGO.19.00038
Nagamine CML, Goulart BNG, Ziegelmann PK. Net survival in survival analyses for patients with cancer: a scoping review. Cancers. 2022;14(14):3304. Disponível em: https://doi.org/10.3390/cancers14143304 DOI: https://doi.org/10.3390/cancers14143304
Perme MP, Stare J, Estève J. On estimation in relative survival. Biometrics. 2012;68(1):113-20. DOI: https://doi.org/10.1111/j.1541-0420.2011.01640.x
Presidencia da República (BR). Lei nº 8.080 de setembro de 1990. Dispõe sobre as condições para a promoção, proteção e recuperação da saúde, a organização e o funcionamento dos serviços correspondentes e dá outras providências. Diário Oficial da União, Brasília, DF. 1990 set 20, Seção 1.
RHC: Registros Hospitalares de Câncer [Internet]. Rio de Janeiro: Instituto Nacional de Câncer; 2020. [acesso 2024 out 21]. Disponível em: https://www.gov.br/inca/pt-br/assuntos/cancer/numeros/registros/rhc
Parkin DM. The evolution of the population-based cancer registry. Nat Rev Cancer. 2006;6(8):603-12. DOI: https://doi.org/10.1038/nrc1948
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